GOP hopeful Rick Santorum campaigns with a seriously ill daughter at home

SIOUX CITY, IOWA — At the lectern in a packed convention center last month, Rick Santorum spoke haltingly, not for the first or the last time, about his seriously ill youngest daughter, Isabella , who has the genetic disorder Trisomy 18. Half of all children with the chromosomal anomaly, more common in girls, are stillborn. And of those who do survive, only one in 10 makes it to her first birthday.

“I have a little girl who’s 3 1 / 2 years old,” the Republican presidential hopeful said in his dinner speech at the annual “Defenders of Freedom” event, hosted by Rep. Steve King (R-Iowa). “I don’t know whether her life is going to be measured — it’s always been measured — in days and weeks. Yet here I am” — on the road so often, he was the first of the current GOP contenders to visit all 99 Iowa counties. Why? “Because I feel like I wouldn’t be a good dad if I wasn’t out here fighting for a country that would see the dignity in her and every other child.”

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Republican presidential candidates gathered in D.C. on Tuesday night for a debate centered on national security. (Nov. 22)

Republican presidential candidates gathered in D.C. on Tuesday night for a debate centered on national security. (Nov. 22)

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His is easily the most searing personal narrative offered by any candidate this season. And when he speaks of Bella publicly, it is almost always in conjunction with his top policy goal of dismantling the health-care reform legislation, which he sees as a threat to those like her, “on the margins of life.”

Yet after he shared the story of her struggle and his decision to run anyway — not so much in spite of her fragile condition as because of it — people at King’s event didn’t seem to know how to respond; as the former Pennsylvania senator slowly worked his way through the emptying ballroom after the dinner, nobody mentioned his daughter, though one woman asked if his children ever got to travel with him.

In a heartbreaking situation, and running near the back of the pack in the polls, Santorum said the campaign has been “incredibly hard” on his family — emotionally and financially. He’s given up all paid employment, including his work for Fox News, to make the run.

Of course, all families of presidential contenders make extraordinary sacri­fices, surrendering privacy, dignity and, sometimes, the inheritance in the hope that their loved one catches on. And other candidates have crisscrossed the country despite a serious illness or other pressing family matter back home. Democrat John Edwards was pilloried for continuing his 2008 presidential campaign after his wife Elizabeth’s cancer came back, though we now know that it was she who insisted he stay in the race. (And while the disapproval may have been warranted, it turns out we had the cause all wrong.)

The ’08 Republican vice presidential nominee, Sarah Palin, was criticized for running while parenting young children, including an infant with Down syndrome. Either out of compassion or — more likely — because he’s polling so poorly, Santorum has been spared that kind of opprobrium.

‘I really struggled’

But the demands on his family, as he described them in an interview after the dinner, have been particularly punishing. He’s on the road virtually all the time, while his wife, Karen, cares for Isabella full time. (Karen Santorum was not available to talk.) Of their seven children, the oldest of whom is 20, he said, “They have opinions all over the map as to whether they want me to do this or not.”

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