Girl at center of fight to legalize cannabis oil dies at age 7

Lydia Schaeffer, the 7-year-old girl with a rare genetic disorder whose plight inspired lawmakers in Wisconsin to legalize a marijuana extract to treat her condition despite their opposition to medical marijuana, has died.

Lydia’s mother, Sally Schaeffer, had been lobbying the state legislature to legalize the drug, an experimental extract from cannabis plants known as Charlotte’s Web, for use on children with seizure disorders. The lawmakers moved to pass the law in record time and Gov. Scott Walker (R) signed the bill into law in April.

But Lydia, who died in her sleep on Mother’s Day, never got a chance to try the treatment because the law’s implementation was still being worked out.

The efforts by the Schaeffers are being replicated throughout the country — in Oklahoma, Florida, Georgia, Utah, New York and other states — by other parents who have shared their stories through Facebook, Twitter and the media.

In her obituary, her parents said Lydia taught them “about patience, what it’s like to be inspired, and most of all we were blessed to witness miracles that otherwise we may have been too busy to notice.” In a column by Jim Stingl in the Milwaukee Journal Sentinel, Lydia’s mother says she wishes she could have done more to help her daughter live.

For some families with children who suffer from rare seizure disorders, a new form of medical marijuana is proving to be a life-changing treatment. (Gabriel Silverman/The Washington Post)

But, Stingl comments, “I witnessed Sally Schaeffer in action, and I can tell you it’s not for lack of trying or the love of a mother for her child.”



Success! Check your inbox for details. You might also like:

Please enter a valid email address

See all newsletters

Show Comments

Sign up for email updates from the "Confronting the Caliphate" series.

You have signed up for the "Confronting the Caliphate" series.

Thank you for signing up
You'll receive e-mail when new stories are published in this series.
Most Read National



Success! Check your inbox for details.

See all newsletters

To keep reading, please enter your email address.

You’ll also receive from The Washington Post:
  • A free 6-week digital subscription
  • Our daily newsletter in your inbox

Please enter a valid email address

I have read and agree to the Terms of Service and Privacy Policy.

Please indicate agreement.

Thank you.

Check your inbox. We’ve sent an email explaining how to set up an account and activate your free digital subscription.