Researching Rare Diseases
When there's the possibility of being affected by a rare or dreaded disease, it's important to find facts quickly. The Web contains a huge amount of health information, but it's not always reliable or accurate.
Here are some sources to turn to should a scary-sounding illness suddenly arise:
National Institutes of Health ( http:/
National Hansen's Disease (Leprosy) Center. Located in Baton Rouge, this facility is part of the U.S. Public Health Service. Find the latest about leprosy, from the location of clinics to frequently asked questions about this ancient disease.
National Organization for Rare Disorders. This nonprofit group has a searchable database that can help you link to rare disease organizations, plus there's a list of more than 1,100 uncommon illnesses.
Centers for Disease Control and Prevention. The CDC is a hub of information for everything from communicable diseases to travel health.