Latest Entry: The RSS feed for this blog has moved

Washington Post staff writers offer a window into the art of obituary writing, the culture of death, and more about the end of the story.

Read more | What is this blog?

More From the Obits Section: Search the Archives  |   RSS Feeds RSS Feed   |   Submit an Obituary  |   Twitter Twitter
Obituaries

Lorenzo Odone, 30; Struggle Inspired 'Lorenzo's Oil'

Augusto Odone's efforts to find a cure for his son Lorenzo's rare genetic illness inspired the film "Lorenzo's Oil." The family lived in Fairfax County.
Augusto Odone's efforts to find a cure for his son Lorenzo's rare genetic illness inspired the film "Lorenzo's Oil." The family lived in Fairfax County. (2006 Photo By Dayna Smith -- The Washington Post)
Buy Photo

Network News

X Profile
View More Activity
By Martin Weil
Washington Post Staff Writer
Saturday, May 31, 2008

Lorenzo Odone, 30, whose story of illness, impairment and the determined effort by his parents to save his life were depicted in the 1992 movie "Lorenzo's Oil," died yesterday at his home in Fairfax County.

His father, Augusto Odone, said that Mr. Odone apparently died of aspiration pneumonia, which can result from a foreign material inhaled into the lungs.

Mr. Odone had been severely disabled by a genetic disease known as adrenoleukodystrophy, or ALD. The rare ailment principally afflicts males and usually results in brain failure and death.

Augusto Odone said last night that his son had always been brave and that "everyone who knew him was crying at his death."

He emphasized that his son's death was "not the result of the disease."

The movie "Lorenzo's Oil" portrays the father's discovery that ALD patients could be helped by a derivative of olive and rapeseed oils.

In an interview last night, Augusto Odone said that an article in a scientific journal asserts that if the treatment is given before symptoms develop, children can escape the effects of the disease.

The discovery came too late for Mr. Odone, who was condemned to silence by what appeared to be the irreversible neurological effects of the disease.

After Mr. Odone's condition was diagnosed more than 20 years ago, his parents learned that children typically lived only a few years after diagnosis. They declined to accept that fate for their son and began searching for a treatment.

The treatment they devised came after hours of poring over obscure scientific journals and obtaining the counsel of many specialists. Although some experts said that the oil might be dangerous, the parents, noting their son's rapid deterioration, decided to take a chance. Augusto Odone credited his son's years of survival to the treatment.

Mr. Odone's mother, Michaela, who joined her husband and nurses in providing their son with constant care, died in 2000.

Augusto Odone said last night that he intended to have Lorenzo cremated so his ashes could be mixed with his mother's.

In addition to Mr. Odone's father, survivors include a brother and a sister.


More in the Obituary Section

Post Mortem

Post Mortem

The art of obituary writing, the culture of death, and more about the end of the story.

From the Archives

From the Archives

Read Washington Post obituaries and view multimedia tributes to Pope John Paul II, Ronald Reagan, James Brown and more.

[Campaign Finance]

A Local Life

This weekly feature takes a more personal look at extraordinary people in the D.C. area.

© 2008 The Washington Post Company

Network News

X My Profile
View More Activity