| Page 2 of 2 < |
'I Am Not My Illness, It Is Only a Part of Me'
|
Discussion Policy
Comments that include profanity or personal attacks or other inappropriate comments or material will be removed from the site. Additionally, entries that are unsigned or contain "signatures" by someone other than the actual author will be removed. Finally, we will take steps to block users who violate any of our posting standards, terms of use or privacy policies or any other policies governing this site. Please review the full rules governing commentaries and discussions. You are fully responsible for the content that you post.
|
Yes, but for the nagging beep of the insulin pump under my bra strap, I do indeed look and function like a full-bodied, normal person.
But therein lies the problem. Take getting sick, for example. For most people, being sick is a dramatic affair. You've got your fever, your chills, your coughs and whatnot. For me, before I get any one of those things, up goes my glucose. High as the sky. Making me exhausted, nauseous and hungry, all at the same time. Once, it was an ear infection that set it off. Usually it is something so minor it is imperceptible. Always, I look as good or as bad when I'm sick as I do when I'm well. Which prompts a "You don't look sick to me" from my boss, when all I want to do is go home and sleep. How can I explain such things?
I suspect that the diabetics who remain undiagnosed are the ones who believe that they are not what a diabetic looks like. But a diabetic looks like anyone else, but for the annoying beep that sometimes sets us apart.
-- By Leda Gottlieb, a lawyer who lives and works in Arlington.
When they came to take me, I wondered how much of a person could be given away without being erased. Appendix. Uterus. This time, part of a breast, lymph nodes (those spacious bacterial flytraps). So far I've been cut, bled, scanned, tattooed, drawn on, injected with radioactive isotopes, anesthetized, X-rayed, medicated to numb pain. Radiation: After the machine stops its whirring sound, I swing my legs off the table and stand up. For a moment, the transition from being acted upon to acting on my own volition is dizzying. Afterward, I lay claim to my body. To my clothing. And to my life.
1955, Cold Spring Harbor Laboratory: Salvador Luria and Max Delbrueck (who would go on to become winners of the Nobel Prize for medicine in 1969) teach us how viruses bind to the surface of bacteria, insert their DNA into the bacterial cell, redirect it to replicate the virus. Multiplied, viruses escape the bacterium, lie dormant until coming into contact with another unsuspecting host. Why do I remember this now?
Though this infiltrating lobular carcinoma may one of these days do me in, I can only admire the incredible body we all possess, with its intricate, interdependent systems that most often stand by us.
If at times the onslaught from outside or from inside is too much for the whole system, if it cannot always respond in ways that would keep us here as long as we wish, so be it. But to be here at all, alive in this perishable and exquisite world is a gift beyond all others.
-- By Myra Sklarew of Bethesda, a professor emerita of literature at American University, who is working on a book on the neuroscience of memory and Holocaust testimony.
If you have a story about living with chronic illness that you would like to share, please send it tohealth@washpost.comand mark the subject line "Living With." No more than 250 words, please.



