Online health sites tap into social networking
In fall 2007, during her 12th week of pregnancy, Garance Genicot and her husband, Shub Debgupta, received worrisome news from the doctor: A preliminary test showed there was a strong possibility that she would deliver a baby with Down syndrome.
What now? Thus began their search to get answers, with little idea of where to turn. Genicot would eventually have a healthy baby girl. But the process they went through inspired Debgupta to start a business aimed at helping other expectant parents make better decisions about health issues.
Debgupta, a former senior director at the Corporate Executive Board in Arlington, is launching a Web site called WiserTogether (http:/
WiserTogether is among several online health sites that began in or have a presence in the Washington area, including HealthCentral, Everyday Health, Revolution Health and Inspire. With the health-care reform debate centered in the nation's capital, experts say they think more sites will start up in the region.
Online health sites have been booming in the past five years, experts say, driven by the popularity of social networking and patients' desire to become more empowered in the increasingly complex medical field. Many of the sites have recently experienced heavy traffic from users seeking information on the H1N1 virus. Officials of the Health 2.0 Conference, which tracks the industry, estimate that the number of such sites climbed to nearly 500 from about 35 four years ago.
The sites generally have evolved from the encyclopedic-styled WebMD, becoming more interactive and case-study- oriented, such as Inspire, PatientsLikeMe and CureTogether.
"You're seeing right now an expansion phase of the relatively early part of the technology cycle," said Matthew Holt, co-founder of the Health 2.0 Conference. "There's a significant advance in what sites are doing."
Inspire, a health-focused social-networking site consisting of 130,000 members, was founded in McLean in 2005 and relocated to Princeton, N.J., in 2008. It partners with 70 associations that advocate for patients with various diseases. The members write entries sharing their health problems and experiences with treatment methods.
"People were talking in waiting rooms since the beginning of medicine. Now they're talking to each other online," said Brian Loew, chief executive of Inspire, adding that the site is nearing the break-even point. "This is not a substitute for the doctor-patient relationship, but it's valuable in its own right."
In general, such sites generate revenue by selling the research obtained from the members, minus their personal information, to health-care companies or by recruiting members for clinical trials conducted by pharmaceutical companies. A few sell ads. Many sites have yet to make a profit.
But that has not deterred Debgupta, who recalls his own struggles getting health information.
To learn more about their baby's condition, he and his wife learned that they would have to choose one of two difficult options. She could undergo an invasive procedure that was highly accurate in determining the health of the baby but could spur a miscarriage. Or she could wait much later in the pregnancy for an ultrasound that was not risky, not invasive but much less conclusive.