Born with dwarfism, teenager Caitlin Schroeder faced the biggest decision of her young life: Was undergoing a painful and costly surgery worth five inches of height? She decided it was.

Caitlin Schroeder, her mother Jennifer Anduha and writer Caitlin Gibson were online Monday, December 1 to discuss Gibson's Washington Post Magazine cover story, "Growing Pains."

Caitlin Schroeder is a freshman at West Potomac High School in Alexandria. Her mother, Jennifer Anduha, is managing director of office services at a law firm in Washington. Caitlin Gibson , legal administrator for The Post, is a writer who lives in Bethesda.

A transcript follows.

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Caitlin Schroeder: Hi, this is Caitlin Schroeder.

Thank you very much for your interest in my story, told by the amazing Caitlin Gibson.

I appreciate all of your questions and comments for me today.

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Jennifer Anduha: Good Afternoon. We are very happy to be able to participate and answer as many questions as we can. We are overwhelmed with the interest this story has generated!

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Caitlin Gibson: Good afternoon, and I hope everyone had a wonderful holiday! I'm looking forward to a great discussion and the opportunity to answer your questions along with Caitlin and Jennifer.

I'd also like to say that I'm extremely grateful to Caitlin and Jennifer, who were incredibly brave in opening their lives to me for a year and a half as they moved through such a overwhelming and challenging process. I am honored that I had the chance to help tell their story. I'd also like to thank Dahlia Kronish for sharing her perspective and experience as well.

Let's get started!

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Mt. Airy, Md.: Hi Caitlin and Jennifer,

Thank you for sharing your story. My son is 12, we live in Mt. Airy, Md.. He has hypochondroplasia. My husband, son and I read your story with great interest and awe.

Here are some questions we have for Caitlin: -If you had it to do over again, would you have the surgery?

-How painful was the surgery and the physical therapy? How long did the pain last... days, weeks, months?

-Now that you are taller, what can you do that you could not do before?

-Do you feel differently about yourself now that you are taller? If yes, how so?

-Did you feel any pressure from Dr. Paley to have the surgery?

-Did you stop growing before you had the surgery?

-Do you think you will you have surgery on your arms?

-Do you think you will have a second surgery on your legs?

-Why are you afraid to tell people that you went through this surgery just to be taller?

Thank You!

Caitlin Schroeder: Hi and thank you very much for your interest. I don't at all regret having the operation, though don't feel the need for another.

It was pretty painful overall throughout the majority of the process, given a time period though I would say about seven months, to anyone going through this I recommend lots of movies, medicine, and ice cream to help deal with pain.

Being taller I can reach more, walk easier, play sports better, find clothes that better fit me, etc.

Being taller I do feel different, I am more comfortable with myself, and I go around saying "yeah I'm still short, but that makes me unique."

Dr. Paley didn't exactly 'pressure' me into doing this, though he did make it clear he thought it was the best decision.

Yes, I stopped growing beforehand, and no more operations on my arms or my legs.

Thanks, best of luck

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Providence, R.I.: Does Caitlin's condition affect the length of her torso?

The article mentioned that it was not inherited from her parents. Would her children inherit it, or only if their father had the same condition?

Jennifer Anduha: The condition is skeletal and really only affects her limbs. Yes, Cailtin has a 50% chance of having a child with this condition -- another decision that she will have to face in the future if she decides to have children.

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Columbus, Ohio: What if your child is a dwarf but you have no health insurance? There's no way we could take on this kind of debt.

Jennifer Anduha: We met several families at Sinai that started foundations to help cover the costs of this surgery. The physical therapy is really the bulk of the expense because the procedures requires daily 2-3 hour sessions for at least 4-5 months.

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Chevy Chase, D.C. : Ms. Gibson:

A wonderful, touching story. Caitlin's courage is inspiring as is Jennifer's total commitment to her daughter. Please forgive me if this is an indelicate question but I am I right in assuming that Caitlin's doesn't manifest some of the other features of dwarfism, that is cranial and dental issues?

Caitlin Gibson: Thank you so much for your comment. Caitlin has hypochondroplasia, which is one of many different forms of dwarfism. The most common form of dwarfism is achondroplasia, which is characterized by some of the features you're thinking of -- certain facial characteristics, etc.

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Brookline, Mass.: This article should be required reading for anyone considering this surgery, and for their parents.

It is extremely timely for me, because my 5 year old daughter, also named Caitlin, is a dwarf. While we plan to let her make her own decision, I simply can't imagine putting my child through this kind of agony. My husband and I are already exploring products to help make lives easier for dwarfs, which are already quite sophisticated, and we figure they will become more sophisticated over time. Just thinking about the pain we will all have to endure if she opts for this surgery already makes me want to cry.

Jennifer Anduha: I wish the very best for you and your family. There were many "low" days throughout this whole process and it was all-consuming for our entire family, but I would do it all over again without hesitation -- the results and what this has done to improve her life are worth everything.

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Virginia: Hello. Great story. I was wondering about the pictures. Were they all pre-op or post-op pictures? She looked fine standing up.

Caitlin Gibson: Thanks! The pictures (which were taken by the fabulous Rebecca Drobis, by the way) were from before and after the surgery to remove Caitlin's fixators. The photographs where she does not have fixators on her leg were from after the surgery and recovery, after she'd gained the added height. The others, where the fixators are clearly visible on her legs, are prior to the surgery.

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Washington, D.C.: I am a second year law student with no experience with dwarfism. I plan to suggest this article for consideration in our ethics class, because of the overwhelming ethical choices involved. I sure hope I never have to make such a decision!

Caitlin Gibson: Sounds like it could be a good fit in that class! Thanks so much for your comment and for reading the story.

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Alexandria, Va.: My mom showed me this article and I was shocked to realize that Caitlin and her family moved to my neighborhood over this summer! A friend of mine lives across the street from her, and we never stopped to even think about what she must have gone through! I wish Caitlin well and hope that she continues to be strong and heal well.

Jennifer Anduha: Thank you!

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Vienna, Va.: I shattered my wrist and forearm in a bad fall 2 years ago, and wound up with 8 pins for approximately 6 months. While I'm reasonably good with pain (I had 3 children via natural childbirth), nothing could have prepared me for this. I didn't scream, but I sure did cry, and took prescription painkillers to the point I was afraid I would become addicted. And these pins were inserted and stayed put the entire time; I had nothing to do but occasionally wipe them down with alcohol. Nor did I require therapy, other than squeezing a rubber ball -- which was bad enough!

I admire these children tremendously and wish them all the best. I have to say, however, that based on my experience I do not think I could consent to this for my child. It's hypothetical in my case, as I'm too old to have further children. My heart goes out to everyone involved in these decisions.

Jennifer Anduha: You bring up a very valid point regarding painkillers. Caitlin was taking very powerful medication through this -- the doctors had to keep reminding me that it was a necessity. She had no ill effects and we were very careful to wean her off sensibly. She has a high tolerance for pain and probably took some of them for a shorter time period than others going through this surgery and rehabilitation. Thank you for reading the article.

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Philadelphia: Congratulations to all three of you. You all handled your part of the situation with strength and grace.

Caitlin S., thank you so much for opening yourself up to the world with this story. On top of everything else it shows incredible bravery and confidence in your decision that you let the writer and the reader in on your journey. I very much appreciate it and admire you.

Jennifer, thank you for letting your daughter decide and loving her so strongly no matter what she chose. I cannot think of a better gift for a young woman than the freedom and support you gave.

Caitlin G., thank you for your sensitivity and keen eye. I started reading thinking "what a brave girl in an unusual situation," i.e. something that would never happen to me. But by the end I identified strongly with Caitlin S., knowing how it feels to have to "excuse" things that make you different and the joy at finding something in this world that fits you, and riding a bike for the first time. I immediately understood how all the pain could be worth it from the inside. Wonderful. Thank you all.

Caitlin Gibson: Thanks so much for such a kind and thoughtful comment, and for reading the story!

Jennifer Anduha: Thank you. I would do anything for my daughter.

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Cumberland, Md.: Personally I find the fact that insurance covers so much of what is essentially an elective procedure for a non-life-threatening condition a disgrace. It is the reason why Insurance Premiums are so high for people. Don't you think these sort of procedures should require a higher percentage of Personal payout and less from the Insurance company? It is also questionable to me whether this sort of surgery should be covered at all. We need to reduce medical costs and premiums -- covering this sort of procedure strikes me as not the way to do it.

Caitlin Gibson: The insurance question is certainly an important one, given the rising costs challenging many people and families. Not all insurance companies cover limb lengthening, and I believe in most cases, they only cover it once the patient has been able to sufficiently demonstrate that the surgery is necessary to achieve certain functionality. It's not covered if it's deemed a purely cosmetic surgery, i.e. for short people (without dwarfism or other genetic issues) who are already at a functional height and simply want a few more inches to increase their stature. It's worth pointing out as well that while the submitted claims for Caitlin's surgery were close to $300K, they are then negotiated down between the insurance company and the hospital -- so insurance doesn't wind up paying quite as much as it seems at first. I'd also note that while this procedure isn't to resolve a life-threatening conditioning, plenty of procedures that aren't necessarily life-threatening are deemed worthy of coverage by medical insurance.

Caitlin Schroeder: Though I do not know much about the way insurance works I wouldn't be so quick to create an opinion. If you have seen what some people I met have to go through everyday I'm sure you would understand why insurance helps cover the cost.

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Washington, DC : Caitlin, Were there others at the rehab center that helped to keep you going? Do you have an "ideal height" that you'd like to achieve?

Caitlin Schroeder: Yes, there were many others at the center, and two other teenage girls that had the same condition as I have. We were not always in therapy at the same time but when we were we were a great support for each other.

I suppose I would have an ideal height, being 5'3 or 5'4 would be nice but right now I am ok where I am, down at 4'9.

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Woodbridge, VA: Hello! My name is Shannon and I am 13 years old. I thought your article was very interesting. I use a wheelchair because of spina bifida. Your article made me think about what if I could walk after undergoing a similar procedure. Of course I would love to walk, but I don't think I could handle the excruciating pain. I think you are very brave and hope you have a wonderful life. Love, Shannon.

Caitlin Gibson: Shannon, thank you so much for your comment and for reading the story. You sound like a very brave and remarkable girl yourself!

Caitlin Schroeder: Thank you so much for writing in Shannon, I know just a bit of how hard being confined to a wheelchair is, but I was only in one for 6 months, you are so amazing for going through this and best of luck to you.

If this is something you are interested in you should contact Dr. Paley and/or Sinai hospital and maybe talk to some of the doctors, they really helped me.

Thank you for writing, you sound like an amazing person

-Caitlin Schroeder

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Clarksburg, Maryland: Hi Caitlin S.

You are beautiful. I am so happy Dr. Paley has worked his magic on you. My husband is a patient of Dr. Paley. He is a Vietnam Veteran who was wounded in 1969. Dr. Paley reconstructed his left leg and made it straight. He also has a titanium rod in his leg but it will stay there.

We just received a letter that Dr. Paley is leaving the Rubin Institute. Do you know where he will be practicing so that we can continue with him? My husband will need one more surgery eventually to take out all the pins (12 of them) and a plate below his knee.

Jennifer Anduha: Thank you. Dr. Paley is truly a miracle worker -- we met so many patients at Sinai and were moved by all of them. I recently heard that Dr. Paley was leaving. I do not know where he is going -- I am hoping Hopkins, but really do not know.

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Gaithersburg, Md.: How did you find Caitlin? Was it difficult to convince her and her family to agree to be profiled for this article?

Caitlin Gibson: I found Caitlin through a random stroke of luck -- through friends, I wound up at a Fourth of July party hosted by Caitlin's grandparents. Caitlin was there, and she had her fixators on her legs. I was immediately struck by Caitlin's presence -- she was remarkably stoic, and her family was open in discussing what she was going through, and why. It wasn't difficult to convince them to do this story at all; I think they were very brave and selfless in wanting to show the real truth of what this process involves, so that other people and families could make more informed decisions as well. I'm incredibly grateful that they agreed to let me follow them everywhere for a year and a half, which was an extraordinary experience for me -- personally and professionally. They're two remarkable ladies.

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Washington, D.C.: As a 4'10" woman, I am perplexed why dwarfs feel the need to be exactly within the average height range. I understand wanting to be a little taller to make the world easier to navigate, but there are plenty of us who are just short who do fine in this world. Wouldn't it be better to have less surgery and bone extensions?

Caitlin Gibson: Thanks for the comment. There certainly are plenty of dwarfs, like Dahlia Kronish, who opt against surgery and are able to adapt and thrive in the world despite the limitations resulting from their height. However you should keep in mind that at 4'10", you're still almost a full two inches taller than Caitlin - AFTER her surgery. There is a big difference between the real-world functionality of someone who is 4'10 and someone who has a max height of only 4' or 4'2."

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California, Md.: My daughter has undergone a similar procedure to lengthen a toe and will have the fixator removed by Dr. Paley within the next month. Obviously, her recovery will be easier than yours, Caitlin, but is there anything you can say to prepare her for the pin removal and recovery process? Caitlin, you are one courageous young lady. Good luck to you in the future!

Caitlin Schroeder: To be honest what helped me overall was the medicine of course, and I kept myself busy with many episodes of Gilmore Girls.

Distraction helps when going through pain like this.

Thanks for writing in and good luck to your daughter!

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Silver Spring: I just wanted to pass along that I was completely engrossed in the story, and came away awed by Caitlin's maturity and immense commitment to endure the whole process. And I was thrilled to see the picture of Caitlin on her bike at the end of the article. Jennifer, you have such a beautiful, confident daughter, and it shows in that picture!

Caitlin Gibson: Thanks so much for your comment and for reading the story!

Jennifer Anduha: Thank you so much!

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Bethesda, Md.: I just wanted to say thank you (both Caitlins) for doing this story. This article brought tears to my eyes. As a hearing impaired musician who relies on hearing aids to be able to do what I love, I've always appreciated how challenging and scary it can be to overcome natural limitations, but I've never had to go through anything of the same scale. It is always inspiring to see what the human spirit is capable of, and Caitlin's story is a prime example. The story is also inspiring to me as a professional biomedical scientist. I hope that both scientists and the general public keep stories such as this in mind as motivation for both doing and supporting (worthwhile) biomedical research. We all have the power to change lives with the proper motivation and care.

Caitlin Gibson: Thank you so much for reading the story and writing in today -- your story sounds like a really inspiring one as well. Best of luck to you.

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Manassas, Va.: How old was Caitlin when you began looking into limb lengthening? As a child what was your biggest struggle with dwarfism? My son has hypochondroplasia and is 3 1/2.

Jennifer Anduha: We met Dr. Rosenbaum when Caitlin was 11 months old and he told us about Dr. Paley then. It was really the furthest thing from our minds, but we wanted all options open and saw Dr. Paley for the first time when Caitlin was about 3 years old. I wish you the best of luck with your son.

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Washington, D.C.: In 1990, I was the first patient in the state of Rhode Island to undergo the Ilizarov leg-lengthening procedure, under the watch of surgeon Michael G. Ehrlich, M.D. at Rhode Island Hospital. Born with a congenital limb length discrepancy, my right leg did not grow at the same pace as my left, and by the time my growth plates closed at age 12, my right leg was 3.5" shorter than my left. The decision was made to lengthen only the tibia and fibula, though there was also discrepancy in the femur.

Reading the Washington Post article about Caitlin Schroeder, the very first thing I noticed was that she was up on her feet, while the fixators were still in place! This was unheard of when I was going through my leg-lengthening procedure! Not only was I non-weightbearing throughout the lengthening, but I was so nervous to walk on my "new" leg once the fixator was removed, that I continued to use my crutches for weeks longer than necessary, until I felt mentally prepared to walk again. It seems that procedures have changed since 1990, and Caitlin was lucky to get back on her feet as early in the process as she did.

Jennifer Anduha: Caitlin was confinred to a wheelchair from March to the end of July while she was actually lengthening. She was only able to "walk" with assistance for very short periods with the fixators on after the lengthening process was complete and the bones were healing to a point where the fixators could be removed. Once they were removed she was completely confined to a wheelchair again with no physical therapy for a month while the 24 bone pin sites healed. Thank you for sharing your story as well!

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Fairfax, Va.: At first I was a little shocked that anyone would undertake such surgery, or that insurance would pay for it, because it was "just" about getting taller. But as I read this excellent article I more fully realized the functional problems that being so short can cause. Although some of them were mentioned in the article, I am curious as to what other new capabilities these additional inches have made possible.

Caitlin Schroeder: I am now able to overall function more comfortably.

I can walk and run easier with less pain and discomfort

I can reach higher up, this would mean I am able to reach dishes, sinks, and other items in my home more easily

And I feel like a have a much more normal life and I am more comfortable in my own skin.

Thanks for writing in.

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Bethesda, Md.: My 5 year old son and I were standing in line at a local craft store where we were chatting with a little person. During the conversation, my son asked the gentleman "Were you small as a baby?" Because we had engaged in conversation prior to his question, I thought that it would be OK to let the man answer instead of saying that everyone is the same and they just come in different packages, etc. But, the man became very upset and told my son how rude he was. This was quite a while ago and I am still bothered by it. Do you have any advice as to how I should have corrected my child's behavior? I really thought it was an innocent question, not purposely rude, since we were already talking to the man... Had my son been pointing and staring, I would have reacted differently.

Caitlin Gibson: This is an interesting question, and one I actually wound up discussing with Dahlia Kronish, who elected not to have the limb lengthening surgery. During my time with Dahlia, who is a teacher, she mentioned specifically that children frequently asked very pointed questions; and she had great patience for this, but I think that is because she is someone who understands and appreciates the way that children see the world and express themselves. It sounds like the gentleman overreacted to a relatively innocent question from your son, in this case. I think perhaps you can chalk this up to the fact that some people are more sensitive than others.

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Lyme, Conn.: From my limited knowledge of dwarfism, there is a lot of pain involved throughout life in being a dwarf, as internal body parts are often against each other more often, sometimes with painful consequences. Is this correct? If so, will this operation reduce or eliminate such pains from your life?

Jennifer Anduha: Fortunately, Hypochondroplasia, the type of dwarfism that Caitlin has, is a much milder form and she will not have to endure some of the medical issues, as you mention. She will, however be prone to arthritic problems, there is no way of knowing, at this point how severe. Thank you for reading the article!

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Arlington, Va.: Thank you for sharing your story with us. My concern is that once all these procedures are completed, there might be a tremendous letdown. I used to be very heavy, and I worked hard to lose weight in the mistaken belief that if I were thin all my problems would vanish. They didn't. I just hope Caitlin does not also end up disappointed that life closer to average height does not guarantee happiness as well.

Jennifer Anduha: Caitlin went into this knowing that is would not solve all problems -- she is a very serious person and was always different in ways that had nothing to do with her height. Honestly, I think I had a harder time understanding this part of it than she did.

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Bethesda, Md.: I am a dwarf, 4' 4" in height, who was too old for the surgery when it became widely available. But I have no regrets. I have a good job and a good marriage, to a non-dwarf but he is only 5'6". I have an M.B.A., a good job, drive a car, and generally make out fine, in part because I have no problem asking for help when necessary (items on high shelves, etc.). I think many people do have problems with that. There are all sorts of products out there designed to make my life easier. The biggest problem is steps, which do wear you out, but I exercise regularly and that helps a lot. To me, this surgery sounds like a lot to go through to cure what has not been a problem. Maybe I was just lucky, but I was not tormented as a child; and I never minded being called Shorty. This is undoubtedly a matter of temperament, but I don't even mind it (usually) when tall people pick me up. I'm sorry this is sort of disjointed but I hope you get my point.

Jennifer Anduha: We appreciate your comments and it sounds like you have an exceptionally accomplished and happy life.

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Manassas, Va.: Thank you for sharing your story, Caitlin. It is reassuring to me, as a mother of a 3 1/2 year old with hypochondroplasia, to know that he has choices for his future. I learned so much from your story.

Caitlin Schroeder: I am so happy that this has helped you, that really makes what I have gone through so much more worth it.

The best of luck to your family

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Rockville, Md.: Caitlin -- I'm curious if you regularly keep in touch with other little persons and what they've had to say about your decision to undergo the surgery. Also, whose opinions ultimately helped you reach your decision -- theirs, those of your parents, those of your classmates, or those of your doctors?

Caitlin Schroeder: I have not met many other little people over my life, though I do know a few and stay in touch with them, these are 'little people' that have also undergone the surgeries.

Others' opinions played into my decision somewhat, though the people around me always told me that they would help and support me no matter what.

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Virginia: I always thought being a dwarf is hereditary or genetics. I wondered how many dwarfs also have parents who are small people? Thanks

Jennifer Anduha: Unfortunately I do not know thoise statistics. All the dwarfs, except for one, that we met or saw at Sinai were children of "normal" size parents. Caitlin has a 50% chance of passing this on to her own children if she chooses to have children.

Caitlin Gibson: The vast majority of dwarfs are born to average-sized parents, the result of an unpredictable "genetic mutation" in utero. However, as Jennifer points out, dwarfs are far more likely to continue to pass on the gene for dwarfism if they have children themselves.

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4'9" vs 4'10": To the woman who said it's not that difficult to be 4'10", I disagree. I'm 4'9" and I have trouble driving cars. And as difficult as it is for me, I know it's 10 times worse for those even shorter. The world is just not made for people under 5 feet tall. Couches are uncomfortable. Tables and chairs are uncomfortable. Airplane seats are uncomfortable. Bus seats are uncomfortable. Most tables at restaurants reach my neck. I wouldn't wish this height on anyone.

Jennifer Anduha: Thank you for your comments. Even still, sitting in a chair for Caitlin can be difficult and painful because her legs dangle and her back is not supported by her feet planted on the ground. I was always terrified she would hurt herself if I let her stand on stools and chairs to reach the counters, sinks, help cook, etc.

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Anonymous: Caitlin, I just want to say that I wish all the best for you and your family. You seem to be much smarter than most 14-year-olds (definitely smarter than I was) and your parents' attitude through this has been admirable. Far more important than conforming to societal ideals is learning how to be happy in our own skin; if you can learn this at 14, you have got quite a jump on the rest of us. Best of luck.

Caitlin Schroeder: Thank you very much.

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Landover Md.: I'm 4'11-ish. My older daughter, now a freshman in high school, is 4'9" and LOVES being short. She likes being unique, and is always disappointed when she finds the rare person shorter than her. I took my younger daughter (7th grader) to a specialist this summer. At the time, she was only 5'3". They talked to her about the different procedures, felt that she still had several inches left in her growth spurt, and in the end daughter #2 decided against doing any procedures. Daughter #1 was totally against my taking daughter #2 to the specialist. Felt that it sent the message that being short was somehow wrong, when in fact, in her words, it's totally awesome. No question, I guess, just thought I'd share!

Caitlin Gibson: Thanks for the comment. It's great that your daughter is happy with herself and with her height -- that's wonderful. Though at 4'9", she's about as tall as Caitlin is now, after her surgery to lengthen her legs by almost six inches. That's a big six-inch difference.

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D.C.: Caitlin,

Why no more operations on your arms or legs?

Thank you, and good luck with everything.

Caitlin Schroeder: I feel fine now with the length of my arms and legs, of course it wouldn't hurt to be taller, but right now I am living in the present and just trying to have fun.

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Caitlin Gibson: Just as a quick FYI for anyone who is interested in inquiring further about limb lengthening - Dr. Dror Paley can be reached directly at dpaley@lengthening.us.

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Spotsylvania, Va.: Caitlin S - I read the entire article with a sense of amazement and respect for what you've done. Not one of us who is not in your shoes can or should judge what you've done. I think you are an amazing young woman and I admire you enormously. That being said, I am curious - do you think the time may come that you'll change your mind and opt for additional surgery? My mother had a fixator type device in her leg due to a serious injury and I saw the trauma it put her through. Regardless of what you do, hold your head up high! You are an inspiration for all of us to be accepting of ourselves while still trying to be the best we can be. God bless!

Caitlin Schroeder: Thank you very much for writing in, I appreciate it greatly.

I think at some point I may consider another surgery, though for now I just want to have fun and live a semi normal life.

Best of Luck

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Tenleytown, D.C.: Has Caitlin had the titanium rods removed from her legs?

She sounds like a very together person. If she is comfortable with the person she is now, I don't think anyone should try to convince her to have further surgery.

Jennifer Anduha: Caitlin has not had the rods removed. We plan to do this in the next 6 months or so -- hopefully will be outpatient surgery

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Maryland: Of all the disabilities, maybe the biggest controversy are deaf people who have cochlear implants to be able to hear. Is there a rush to be become more able than being disabled? Would that be the same situation for Caitlin? Does she wish to be more normal?

Jennifer Anduha: I hope Caitlin answers this as well, but for her much of it was a functionality issue. Caitlin is such an independent soul and she could not bear the fact she was so limited in many ways. I feel that anything to make life easier and more fulfilling should be considered, but it always boils down to a very personal decision that no one should be forced into.

Caitlin Schroeder: I felt that taking advantage of this procedure offered to me was the best choice for me, I think every person is different and decisions like these have different impacts on each one, for some living a more normal life would be better, and for others maybe not.

Thanks for your interest.

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Columbia, Md.: I am a 37 year old woman, 4'9" tall. When I was growing up in the 70s and 80s, my parents argued about whether I should take growth hormones. My mother won the argument, and I didn't take the hormones. I will say life is definitely more challenging if you are under 5 feet tall. But I am happy that I didn't take the hormones because the long-term side effects were unknown at the time. It's a VERY difficult decision whether or not to alter your height. Everyone should be fee to make the decision that is right from him/her. But speaking as a short person, I wish there were more of us so I wouldn't feel so alone. There is hardly a day that goes by without someone commenting about my height. Good luck with your life.

Jennifer Anduha: We actually saw Dr. August, at Children's Hospital about hormone therapy when Caitlin was 3-4 years old -- there was a study in Asia that indicated that, even for those with skeletal displasia, hormone therapy could be beneficial. He flat out said it would have no effect and we did not pursue.

Caitlin Schroeder: I know exactly how that feels.

Thank you, and best of luck!

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Anonymous: Caitlin Cuyle and Jen... Did either of you EVER regret Cait's decision?

love you both...

Lins

Caitlin Schroeder: There were a few rough points in the hospital when I felt like going back, but it wasn't possible.

Now, looking back, I feel I have made the right decision.

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Columbia, MD: Great story! It must have been difficult to make this decision, Caitlin S, and I'm glad you shared your story for others going through similiar decisions and ordeals.

Caitlin Gibson: Thanks so much for your comment and for reading the story.

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Los Angeles, Calif.: Hello - thank you for sharing your experiences! I'm wondering what you think the pros and cons are of having the limb lengthening done at age 13 versus younger or older ages. I'd be interested in your thoughts on medical, physical, social, maturity level, etc. considerations. Thanks!

Caitlin Gibson: The main advantage to doing the limb lengthening at a younger age is simply that the bones lengthen and heal faster and more successfully. However, at 13, Caitlin's bones were still strong and malleable -- she gained a little more height than they'd projected, and healed successfully. From a social and maturity level perspective, she was able to make her own decision and fully understand what would be involved. A seven year-old child can't possibly comprehend what a limb lengthening process will really be like. It's tricky to find exactly the right balance between what is ideal medically and physically, versus what is a better idea from a social and emotional perspective.

Jennifer Anduha: For us the decision was Caitlin's and we did not think she was ready for that decision until she was at least 12 years old. We met many parents at Sinai that told us when the proecdure is done at a very young age the child does not really remember much -- a positive thing I think. The child has so much to do with this -- their strength and their character -- we witnessed one young girls (6 years old) that was the most stoic kid I have ever seen and another child (8 years old) that made physical therapy a Hell for anyone else that was unfortunate enough to be in the same room with her. For us, we felt like we were the lucky ones, that there were so many patients going through so much more. All the patients there give each other strength.

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Baltimore, Md.: Caitlin S -- thanks for sharing your story. At your new school, did many people (friends, teachers) know your story before the article came out?

Caitlin Schroeder: few did, I only explained details to close friends and teachers. I didn't want to be categorized for that.

Thanks for writing in

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Virginia: Hello and thanks for sharing your story, Caitlin. I used to work part time in a PT office and we had several patients of Dr. Paley. It was truly heroic what they went through during the limb lengthening process. They all spoke very highly of him. Have you decided about the arm surgery? What has affected your decision, one way or the other? Best of luck!

Caitlin Schroeder: Thank you for writing in.

I think anyone who has met Dr. Paley has great respect and admiration for him, he dedicates his practice and his life to helping others live more normally.

I have decide not to get my arms lengthened, they look normal at the length they are now so I feel it isn't necessary.

Thanks!

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Fairfax, Va.: To Jennifer - I know I am not saying anything that you do not know, but I have a daughter about Caitlin's age with problems that cannot be corrected with surgery. That your daughter is so clearly intelligent and articulate is a blessing.

Jennifer Anduha: Thank you and I wish the best for you and your family. I absolutely feel like we are so lucky -- there are so many people living with diseases and conditions far beyond anything we had to deal with and we are truly grateful.

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Rockville, Md.: I am an adult woman without dwarfism, but I am 5 feet tall. Some things are still challenging -- like the top shelf in the grocery store. I cannot see over the hood in most cars. Caitlin, I applaud your decision to have this surgery. I hope it helps you to go through life more smoothly. I think most people would choose to correct something about themselves if it helped them to function more easily. After all, don't many people wear glasses, contacts, have Lasik eye surgery, use hearing aids, or have corrective surgeries? I know what you did was painful, but I am sure you will always be glad you had the surgery. Best of luck!

Caitlin Schroeder: Thank you very much, best of luck!

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photo of Dahlia: As someone who knows Dahlia personally, I wish the story could have included a photo of her...

Caitlin Gibson: I do too. The photos of Dahlia were wonderful -- Rebecca Drobis is an amazing photographer -- unfortunately, we just didn't have as much room as I wished we did.

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Chinatown: Congrats on the success of the procedure. I admire Caitlin's maturity and bravery. Caitlin - do you stay in regular contact with other limb-lengthening recipients? If so, how does it help you?

Caitlin Schroeder: Thank you very much, there is only one other limb-lengthening recipent I stay in touch with, unfortunately it is difficult staying in touch with most of them because of the distance and time differences.

Caitlin Schroeder: And, yes, it helps to compare stories, feedback, and new experiences that come with gaining the height.

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Annapolis: Caitlin- I heard a snippet of your interview on NPR and it was very inspiring to read your story today. I don't think I need to tell you what an amazing family that you have - especially your wonderful Mother!

It seems that one of the most important lessons that you and your family have learned is patience and understanding. I think you expressed great compassion and insight about the choices that you have made, and you seem to be at peace with them. I am sure your story will serve as an inspiration to others struggling with making a similar choice. There really are no right or wrong answers- but there can be a long road towards accepting what is if society and standard measurements for the height of things make it difficult. Our society has come a long way towards making things 'handicapped accessible' for those in wheelchairs, but because of the few numbers of those with dwarfism, I doubt that there will be pressure to adapt things for them.

If I were your Mom, I would have cried (with joy) when you were finally able to find "your size"! It's such a simple thing for a young woman to be able to wear fashionable clothes... and yet there is so much 'female bonding' and pride that comes with dressing up and looking and feeling your best.

Jennifer Anduha: Thank you so much. I had many many moments of crying for joy -- the first time she stood with the fixators on -- overwhelming. Having Caitlin in a wheelchair for those 7 or so months (and hers was exceptionally hard because her legs had to be out straight and not bent) really opened my eyes to the struggles of those confined to wheelchairs and the many limitations they deal with.

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McLean, Va.: Ms. Schroeder - you talk about "increased functionality" in the article. Could you describe some of the things you can do now that you couldn't do before? Thanks!

Caitlin Schroeder: I am able to walk and run with less difficulty, reach higher shelves, and overall am able to live as a more 'normal' person would.

Thanks for your interest.

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Clarksburg, Maryland: I have been reading the comments and a thought came to mind. Many people think this surgery is simply about becoming taller as though it is cosmetic. It is more complicated than that. It is also a personal choice. Thank God medical procedures like limb lengthening have developed so that Caitlin and others can HAVE a choice. I am so thankful that we found Dr. Paley. My husband spent 35 long years in constant pain and there was not one doctor who had a clear plan of what to do to fix his deformed lower half due to the wounds he received in Vietnam. Thanks to Dr. Paley and his wonderful staff he can now walk without pain. It is wonderful that Caitlin lives in an era where medical technology has advanced so that she could make this choice.

Caitlin Gibson: Thanks so much for sharing your own story -- Dr. Paley and Dr. Standard and the other surgeons at Sinai have certainly had an incredible impact on many lives. It's wonderful to hear that your husband is another one of their many success stories. Thanks so much for reading the story.

Jennifer Anduha: Thank you for sharing. We think Dr. Paley and Dr. Standard are truly miracle workers -- we have seen the many lives, in addition to my daughter's, that they have improved for the better.

Caitlin Schroeder: Thank you very much, you really understand what this process is about.

Best of luck

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Landover, Md.: I meant of course that daughter #2 (12 years old) was only 4'3 (5'3 is a typo), but I'm hoping that before she's through growing she'll be at least 4'7, still pretty small (and not even dwarf... just short) She'll struggle with many things, but I'm hoping she'll develop a good attitude like my 4'9" daughter. It sounds like my daughter would get along well with Caitlin who has a good attitude about being uniquely short at 4'9!

Caitlin Gibson: Got it -- thanks for the clarification.

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Arlington, Va.: I'm curious about how Caitlin made her decision, and how she separated what she wanted for herself and what she was doing for those around her? I have to say I'm in my 30s and still struggle with that.

Jennifer Anduha: I think Caitlin should answer this, but I never felt for one second that Caitlin was doing this for anyone else. She wanted to physically be the person that she was mentally inside -- if that makes sense.

Caitlin Schroeder: There were many reasons that went into my choices, but overall I wanted to be taller so I could live a more normal life, and I didn't want to go through my whole life wondering what would happen if I had had the operation.

Thanks for writing in

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washingtonpost.com: Young Woman Gains Inches, Self Confidence (NPR's Tell Me More, Dec. 1)

Caitlin Gibson: Caitlin and Jennifer had a great interview today with Michel Martin on NPR's "Tell Me More" -- here's the link.

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Washington, D.C.: I just wanted to thank the three of you for one of the most inspirational stories I've ever read in the magazine. I think Caitlin is a beautiful and intelligent young lady and I wish her all the best!!

Caitlin Schroeder: Thank you very much.

I wish you the best as well

Jennifer Anduha: Thank you!

Caitlin Gibson: Thanks very much for reading the story and writing in.

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Mechanicsville, Md.: Caitlin Cuyle ... did you at any point in the process ever regret the decision you made in undergoing the surgery? And Jen, same to you because I know how much you gave up to give Caitlin all she needed during all this... was there ever a point where you wished she didn't go through with it all?

I'm very proud of how strong you are baby sis, mature, and wise beyond your years...

love ya :D

Lins

Jennifer Anduha: Not once

Caitlin Schroeder: Thanks sis!

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Columbia, Md.: Caitlin, congratuations on your hard-earned height. I went through lots of testing when I was about 10 and still very small just to have doctors determine that being of short stature merely ran in my family. I ended up about 4'10" and a half, but pursued my dream of a career in law enforcement despite my height. Though people have often been amazed I could be a police officer at under 5' tall, I did it. I think you have a new world of possibilities open to you now and you will have the time of your life exploring them.

Caitlin Schroeder: You are very inspirational, that rocks that you are a police woman and about the same height as I am.

Best of luck and thanks for writing in

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positive images of dwarfism: It's an interesting dichotomy--on the one hand the success of the Roloffs on Little People Big World, and young people and their parents who think that height and/or functionality is always a barrier to success... I wish I were as successful as the Roloffs! Luckily we have their program to show that people with dwarfism thrive despite physical challenges.

Jennifer Anduha: I never thought Caitlin's height would be a barrier to her success, but I am very aware that society, unfortunately, can have a huge impact on what is "normal" and I wanted her to do what was right for her -- bone lengthening was the absolute right thing for her.

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Caitlin Gibson: Well, that hour went fast! Thank you so much to all for reading the story and for joining us here today. It's been wonderful to have a chance to answer your questions and comments. Take care!

Caitlin Schroeder: Thank you so much to anyone who wrote in about my story, it is amazing to know that I have help some people in some small way and I have heard some inspiring stories that are amazing.

Thanks for your interest!

Caitlin Schroeder

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