Alzheimer's Facts:
- Currently 5.2 million Americans have Alzheimer's disease and the incidence keeps increasing (2008 Alzheimer's Disease Facts and Figures)
- As the U.S. populations ages, the prevalence of Alzheimer's disease will increase
- 13 percent of people over 65 have Alzheimer's
- 42 percent of people over 85 have Alzheimer's
- In 2011, the 78.2 million baby boomers start turning 65
- By 2050, 11 to 16 million people over 65 will have Alzheimer's and 60 percent of people over 85 will have Alzheimer's
- Estimates of Worldwide Prevalence of Alzheimer's disease range 24 -29 Million
- The numbers are expected to triple or quadruple by 2050
- Currently the U.S. makes up 20 percent of those suffering from Alzheimer's disease
- The largest growth is expected in Asia Pacific, especially in China and India, where cultural context and negative stigmas may make a service like Project Lifesaver very slow to be adopted.
- The opportunity outside of the U.S. is at least as large as in the U.S.
- Wandering is the most life-threatening behavior associated with Alzheimer's disease (AD) (Source: Alzheimer's Association)
- Occurs at any stage of the disease (SAR Research website)
- There is no way to predict who will wander or when and how it might happen. The best advice for caregivers is to be prepared!
- When people with Alzheimer's wander away from a caregiver, they seldom seek help, do not usually respond to shouts, and leave few physical clues to their whereabouts.
- 69 percent of wandering cases are associated with severe consequences.
- 46 percent mortality rate if not located within 24 hours
- 59 percent of people affected with Alzheimer's disease wander during course of disease (Alzheimer's Association), but estimates go up to 67 percent since many wandering incidence not reported to Law Enforcement
- 45 percent of those cases end tragically in death if the person is not located within 24 hours
- Over 125,000 people with AD critically wander each year in the US
- Only ~34,000 are reported to police
- 89 percent of the time the person is found within 1.2 km of home but only 14 percent of time on the road, so often hard to find
- 28 percent of the time in creek/drainage
- 33 percent of the time caught in briars or brush
Autism Facts:
- Autism is the fastest growing developmental disability and also leads to wandering behavior (According to the Autism Society of America: www.Autism-Society.org)
- As of October 2009, two new government studies indicate about 1 in 100 children have autism disorders
- The new estimate means approx 673,000 American children have autism
- One study from the 2007 National Survey of Children's Health, based on telephone surveys, said parents reported that approx. 1 in 91 children, ages 3 to 17, had autism including milder forms such as Asperger's syndrome
- Every 20 minutes, a child is diagnosed with autism. – Autism Speaks
- 10-17 percent annual growth
- 90 percent of costs are in adult services
- For individuals who run away or leave the home without supervision (also referred to as "elopement"), having locks on the doors can prevent them from leaving.
- In a recent NAA online survey, 92 percent of the respondents said their autistic child was at risk of wandering.
Down Syndrome Facts:
- Many people with Down syndrome require lifetime care and have the potential to wander or be missing (www.NDSS.org)
- One in every 733 babies is born with Down syndrome. In the United States today, Down syndrome affects more than 400,000 people.
- Down syndrome: Another big concern we hear from parents is their child wandering off - not because they're angry or running away, but rather, because they simply like to explore the neighborhood.
Wandering Impacts:
- Impact on person with disease
- Wandering and not being found within 24 hours can lead to significant injury or death
- Concern over wandering causes a need for more supervision limiting the sufferer's ability to do things
- Inability to lead a normal life relative to the age
- Impact on caregiver
- The consequences of a wandering incident range from the sinking feeling of a missing loved one to a tragic lonely death
- Increased strain on caregiver providing care and its effects (e.g. depression, health issues, reduced employment)
- The estimated cost of the 9.8 million "volunteer" caregivers for those with Alzheimer's is $89 billion
- Impact on facility
- Average cost of Assisted Living facility for someone with Alzheimer's disease is ~$4000/month vs. ~$2000/month or non-AD patients
- Costs associated with monitoring (e.g. a security system that warns when a resident with limited rights is leaving the building)
- Limitations on outings for people with AD or other wandering illnesses, or additional staff and resources for the outing
- Impact on Law Enforcement (required by law to search for those with diminished (mental) capacity that go missing)
- Average search without PLI and LoJack SafetyNet takes multiple hours, many resources at an average cost of $100-350K
- "Before Project Lifesaver a search would take 7-9 hours and 40-60 officers, now it takes an average of 12 minutes and 2 officers." -- Ed Rochford, Morris County, NJ
- Often the search results in unfortunate results (if not found within 24 hours the person is likely to be found injured or dead)
- Huge negative affect on Law Enforcement after unsuccessful SAR outcomes– low morale and negative PR
Source: Project Lifesaver