As the Trump administration moves to give states more flexibility in running Medicaid, advocates for the poor are keeping a close eye on Indiana to see whether such conservative ideas improve or harm care.
The changes were a part of Indiana's deal with the Obama administration to expand eligibility, adding about 240,000 Hoosiers to the Medicaid rolls under the Affordable Care Act. The controversial monthly fees and lockout provisions were spearheaded by then-Gov. Mike Pence, who is now vice president, and his top health consultant, Seema Verma, who now heads the federal Centers for Medicare & Medicaid Services. That demonstration project, known as Healthy Indiana, is up for renewal in February, and state officials seek to add work requirements similar to what CMS approved for Kentucky last month and to widen who is subject to lockouts.
With CMS expected to approve Indiana's renewal in the coming days, much remains unknown about how well Healthy Indiana is working, such as whether it has improved the efficiency of Medicaid.
But some results are in.
About 25,000 adults were disenrolled from the program between its start in 2015 and October 2017 for failure to pay their premiums, according to state reports. Yet, state officials estimate that based on surveys of recipients, about half of those who were disenrolled found another source of coverage, most often through a job.
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During the first two years of the experiment, about 10,000 Indiana Medicaid enrollees were subject to the six-month lockout for failing to pay the premium for two months in a row. The state did not provide lockout data for 2017.
While premiums are required of all adults added under the expansion, the lockouts apply only to those with incomes from 101 to 138 percent of the federal poverty level (about $12,200 to $16,600 for an individual). Those with lower incomes — more than 80 percent of Healthy Indiana enrollees — lose their vision and dental benefits for failing to pay the premium.
Several Republican-controlled states that expanded Medicaid have followed Indiana to adopt premiums. But the Indiana model is also attracting attention from some of the 19 conservative states that are leery of expanding Medicaid. Yet the possibilities of spreading the Indiana model worry Medicaid advocates, who fear that it can lead to poor Americans missing out on care.
Joe Moser, who was Indiana's Medicaid director when the program was instituted and is now a consultant, said the expansion is achieving many of its goals, including reduced use of hospital emergency rooms for non-emergencies and more enrollees opting for preventive services to stave off more expensive care later.
State officials promoted the monthly premiums and lockout features as a way to give Medicaid enrollees "skin in the game" so they would make better health care decisions. "The lockouts give a powerful incentive for people to continue paying for their health care," Moser said.
The provisions were key to winning enough political support to expand Medicaid.
Susan Jo Thomas, executive director of Covering Kids and Families of Indiana, an advocacy group, said even without knowing the effect of the premiums and lockouts, the Medicaid expansion was still worth it.
"It's literally saved lives," she said.
"To me the lesson is, it's been worth a try to do a demonstration project to increase access," she added. "It would never have sold politically, if we didn't do this. … Sometimes you have to settle for getting three-quarters of a loaf of bread rather than getting no bread at all."
Mirroring national trends following implementation of the health law, Indiana's uninsured rate has dropped from 14 percent in 2013 to 8 percent last year.
Now, advocates worry that the Trump administration is poised to grant Indiana a long-term extension of the Healthy Indiana expansion — and add a requirement that nondisabled adults work or volunteer 20 hours a week. The state also seeks federal permission to lock out any adults who fail — regardless of income level — to renew their coverage in a timely manner.
Those changes would "be a big step backwards," said Joan Alker, executive director of the Georgetown University Center for Children and Families. "The problem is when people lose their coverage or get locked out, their health needs do not go away."
In addition to those who were disenrolled, another 46,000 adults who signed up for Medicaid during 2016 and 2017 were not accepted because they did not pay their initial premium, the state reported.
These premium payments go into special health savings accounts for enrollees to cover some medical expenses. Monthly contributions, based on income, range from $1 to $27. About half of current enrollees pay $1.
Thomas said one of the biggest benefits of the state's Medicaid expansion had nothing to do with new requirements on beneficiaries. Rather, the state's decision to increase pay to doctors to the same rates as Medicare has resulted in many more specialists to treat Medicaid recipients and reduced access problems.
Kosali Simon, an economist at Indiana University, said there are many unanswered questions about the effect of the state's Medicaid expansion, such as whether the added premiums make enrollees better health shoppers. And there is no evidence the Indiana strategy is more cost-efficient than traditional Medicaid, she said.
But there's no doubt the Medicaid expansion was a good idea, she said: "If we are asking if the state did better off than having no expansion, then pretty clearly the answer is yes."