Move Against Migraine is one place to start. The brainchild of the American Migraine Foundation, a nonprofit committed to migraine research and support, the initiative was designed to empower migraineurs and their loved ones.
Its website is packed with info on the impacts, causes and treatments of migraine, with specific information on migraine triggers and different headache disorders, and a feature that connects patients to health-care providers. There’s group support, too, in the form of a lively Facebook group run by doctors and migraine experts. More than 15,000 members strong, it’s a place to learn about treatment options and to participate in migraine-related events.
If you’re living with migraine, there’s another way to get involved: the newly launched American Registry for Migraine Research (ARMR). Its founders, with financial support from drug companies, hope to provide researchers with ongoing data so they can study the malady over time and delve into the similarities among people with chronic headaches.
ARMR collects demographic and health information from each participant, along with an optional blood sample. Available to patients at a handful of facilities including the Mayo Clinic in Phoenix and the Thomas Jefferson University Headache Center in Philadelphia, it’s still new. But the hope is that ARMR will grow into a valuable resource for making treatment more effective.